Six years ago, I was diagnosed with a condition I had never heard of, despite living in the epicenter of fungal respiratory chaos. Three years ago, I learned that the infection had disseminated to the soft tissues of my leg, hiding behind my patella, clinging to my shins, and padding the soles of my feet.... Continue Reading →
Missing Memories
Lately, I've been feeling a bit down. We're re-watching Seinfeld because it's the obvious choice when we can't decide what to watch. With each episode, I find myself verifying, "We've seen this before?" Several seasons in, I am realizing that I have absolutely no recollection of any of the content. It seems that I mentally... Continue Reading →
It’s Mitochondria, Not Hypochondria
It's been quite awhile. How have you been? I hope you're doing well, or at least as well as can be expected with the current state of the world. Five years ago, I left Easter brunch early. After seeing my ghastly complexion and hearing my wet, hacking cough, my family suggested I go to the... Continue Reading →
Taking on the Inflamasaurus Hex
Last night, my boyfriend brought up a shocking internet prank where someone finds an adversary's address through their IP address and the places a call to the police departments pretending to be said adversary. The local S.W.A.T. team swarms an innocent victim's home, led to believe that the individual is armed and dangerous. The in-game... Continue Reading →
When The Body’s Stress Response Gets Permanently Switched On
Four years ago this month, I was forced to spend a full month in bed while assaulted by a vicious cough, painful aches and terrifying hallucinations. I lost 16% of my body weight and gained a permanent scar on my lung. I was told it sometimes takes years to fully recover, so I practiced patience... Continue Reading →
But You Look Healthy!
In December of 2017, my body begin falling apart. My physical fitness regressed substantially after two years of resistance training progress. I woke up tired and yawned constantly throughout the day, deeply offending friends and family. I struggled to stay alert at work and in conversations, and my acute sensitivity to caffeine slowly dissipated. I... Continue Reading →
Feeling Better, Literally Overnight!
Last week, my integrative physician recommended several new supplements to remedy nutritional and physiological deficiencies. I pulled out my wallet and said, "Take my money!" because, right now, it feels like the most empowering thing I can do for my health. Along with addition of glutathione (protects cell mitochondria by eliminating free radicals) and calcium... Continue Reading →
Riding The Waves of Emotion When The Prognosis Isn’t Good
I'm the person who gets misty eyed in nature documentaries when the predator captures its prey. The shark eats the penguin, who eats small fish, who in turn eat the algae. When the shark dies, its body will decay and its nutrients will be adsorbed by the algae. It's horrific and devastating, and it's, quite... Continue Reading →
That Sneaky Little Bastard…
Last week was relatively uneventful, that is until I started compiling medical records for my new Integrative Doctor. My goodness, there are a lot. My father-in-law, a retired radiologist, reviewed my PET-CT scan back in September and didn't see anything noteworthy. My vital organs were good. Thus, when I received the radiology/oncology report back, I... Continue Reading →
The Precarious Position of Those Diagnosing Rare Diseases
Last week, I was browsing research articles on NCBI and NIH using the key terms dropped at my most recent medical appointments. I began by searching for "mitochondrial dysfunction" and "maximal oxygen consumption deficit," and then quickly descended ever-deeper into the rabbit hole. I ended my search on a book excerpt that has stuck with... Continue Reading →
Radioactive Retort
The local hospital just called to schedule my PET/CT scan. On Friday, I'll have a bit of gallium pumped into my system and then spend three hours strapped down while a machine searches my entrails for biochemical anomalies. Since this is a nuclear radiology procedure, I will need to wait patiently for the results like anyone... Continue Reading →
The Difference Between Responsibility and Blame
Lately, I've been thinking quite a bit about blame and about responsibility. What does it mean to take full responsibility for your life? How can I let go of past mistakes and focus solely on moving forward? The last several years have been filled with guilt, shame, and self-blame. The monthly visits to my family... Continue Reading →
When Everything And Nothing Changes
I've been feeling discombobulated lately. Restless, frustrated, a little bit lonely, and unable to focus. The feeling is subtle, yet intrusive and pervasive to the point of debilitation. I begin each morning with the same routine. I take my blood pressure while reading the day's entry from The Daily Stoic, journal whilst sipping on perfectly milky... Continue Reading →
Maybe You Have Stupid Mitochondria
Yesterday, I received a call just moments before 5pm. An infectious disease doctor at a local hospital wanted to see to me. The medical assistant asked, "Can you come in tomorrow at 8am?" I did not hesitate for a moment in my response. I arrived and the doctor asked me to go over the entire... Continue Reading →
Lost, Orphaned, and Alone
The most challenging part of my illness is not the hair loss, skin ulcers, or constant nausea. I'm starting to come to terms with the swollen joints and the forced sabbatical from lifting, hiking and cardio. I'm okay with the fact that I'll be on heavy-duty medication for at least ten more months and, quite possibly,... Continue Reading →
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