The Precarious Position of Those Diagnosing Rare Diseases

Last week, I was browsing research articles on NCBI and NIH using the key terms dropped at my most recent medical appointments. I began by searching for "mitochondrial dysfunction" and "maximal oxygen consumption deficit," and then quickly descended ever-deeper into the rabbit hole. I ended my search on a book excerpt that has stuck with... Continue Reading →

September 27, 2018 5

The Infection That Never Went Away

I've been to over 50 doctors’ appointments so far this year, all of which inevitably involved a blood pressure test. The physicians typically just scrunch up their face ask if I've been tested for anemia. I reply, "I think so," and we move on. Last month, a new doctor took my blood pressure and was... Continue Reading →

July 20, 2018 4

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