Two Steps Forward, One Step Back

Yesterday, I didn't experience any soreness in my legs all. I ascended a flight of stairs at work, as usual. I enjoyed a two mile evening walk, as usual. But one thing was notably different. I didn't stop once to rest my legs. For the first time in over 20 months, I walked further than... Continue Reading →

Lost, Orphaned, and Alone

The most challenging part of my illness is not the hair loss, skin ulcers, or constant nausea. I'm starting to come to terms with the swollen joints and the forced sabbatical from lifting, hiking and cardio. I'm okay with the fact that I'll be on heavy-duty medication for at least ten more months and, quite possibly,... Continue Reading →

Groundhog Day

I spent thirty minutes talking with my infectious disease doctor and nurse practitioner this morning. How am I progressing (or not)? What are my prospects? How does my recovery compare to similar cases? Would a different diet, more sleep, or alternative medicine help? "I don't expect you to get worse," she offered. "Gradually, over the... Continue Reading →

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