ever seeking a right-fit life
For those readers with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), mast cell activation syndrome (MCAS), long COVID, autoimmune conditions, or any other form of immune regulation, I just discovered a great article that I want to share. Long COVID: From last days to real hope… After many years of trying to make sense of my health,... Continue Reading →
Looking back over the last few months of posting, there has been an excessive amount of heaviness and uncertainty. See here, here, and here. The future is bright, but I keep looking into the rear view mirror at the abysmal black hole I'm leaving behind. I believe, wholeheartedly, that good things are coming my way.... Continue Reading →
Six years ago, I was diagnosed with a condition I had never heard of, despite living in the epicenter of fungal respiratory chaos. Three years ago, I learned that the infection had disseminated to the soft tissues of my leg, hiding behind my patella, clinging to my shins, and padding the soles of my feet.... Continue Reading →
Six years ago, I was a high-functioning and successful Type A personality who had seemingly achieved success in all areas of life. I was an overpaid department head who excelled at my work. I had a fit an athletic body and loved teaching others how to achieve the most challenging poses in yoga. I had... Continue Reading →
It's been quite awhile. How have you been? I hope you're doing well, or at least as well as can be expected with the current state of the world. Five years ago, I left Easter brunch early. After seeing my ghastly complexion and hearing my wet, hacking cough, my family suggested I go to the... Continue Reading →
Yesterday, I didn't experience any soreness in my legs all. I ascended a flight of stairs at work, as usual. I enjoyed a two mile evening walk, as usual. But one thing was notably different. I didn't stop once to rest my legs. For the first time in over 20 months, I walked further than... Continue Reading →
It's the final moments that define a journey and the first ones that make it possible. Both, we have total control over. Just over a month ago, I took my doctor's advice and made some drastic changes to my diet, in hopes of shifting my trajectory. I chose to embark on a new leg of my... Continue Reading →
Time rages like a river, rushing by, offering momentary glimpses into the truth of reality. The days pass by in steady succession, marching towards some yet-unknown destination. I have spent the last several years coasting along the ebb and flow of some evasive ailment. I've spent portions of the journey violently kicking and other stretches... Continue Reading →
I force a cough and it's done. The gynecologist drops a small T-shaped device on the bedside tray, its bloody tail looping into a figure eight. The petite women with blue gloves and a wide smile reminds me to call if I need anything before shutting the door behind her. I had the copper IUD... Continue Reading →
As flat palms and extended fingers are pressed into an assortment of mats and as shins are carefully balanced on triceps, I remain crumpled at angles—tiny grid marks forming on my forehead as the smell of 5-year-old rubber wafts up my nose, trying to steal my attention. I am learning, ever so slowly, to listen... Continue Reading →
Lately, I've been experiencing a subtle shift. It's as if, slowly and inexplicably, my body is making it's way back home. My bones are weary but my spirits are high, like a lost dog returning from an extended jaunt. Magma is quietly rumbling through my veins as tectonic plates scrape along, making space for something... Continue Reading →
Have you seen those videos of toddlers receiving their first tiny pair of glasses or paraplegic dog receiving a set of wheels? The pure joy and enthusiasm is tangible as these previously-hindered individuals are given a new lease on life. Today marks day ten of Low-dose Naltrexone (LDN). After five days at 1.5mg followed by five... Continue Reading →
For as long as I can remember, I've been drawn to words. Strung together and paired with pictures, words introduced me to new worlds. The stories taught me to exercise my own imagination and ask, "what if?" in response to the mundane and the absurd. As a young child, I sat in my parents' laps... Continue Reading →
I just learned that September is self-care awareness month, and I'm taking it as a sign that it's time for to focus wholeheartedly on loving and caring for my body. Self-care is important for everyone, but I think it's especially beneficial for those navigating their ways through chronic illness, a difficult time, or even and... Continue Reading →
How do you to live life to the fullest when your health limits everything you do? How do you cope with waiting for some relief when, in reality, there's no reprieve in sight? There are no easy answers to these questions. The mounting unknowns become overwhelming as symptoms worsen in spite of rest, medication, and... Continue Reading →
existential ergonomics 