Six years ago, I was diagnosed with a condition I had never heard of, despite living in the epicenter of fungal respiratory chaos. Three years ago, I learned that the infection had disseminated to the soft tissues of my leg, hiding behind my patella, clinging to my shins, and padding the soles of my feet.... Continue Reading →
Riding The Waves of Emotion When The Prognosis Isn’t Good
I'm the person who gets misty eyed in nature documentaries when the predator captures its prey. The shark eats the penguin, who eats small fish, who in turn eat the algae. When the shark dies, its body will decay and its nutrients will be adsorbed by the algae. It's horrific and devastating, and it's, quite... Continue Reading →
That Sneaky Little Bastard…
Last week was relatively uneventful, that is until I started compiling medical records for my new Integrative Doctor. My goodness, there are a lot. My father-in-law, a retired radiologist, reviewed my PET-CT scan back in September and didn't see anything noteworthy. My vital organs were good. Thus, when I received the radiology/oncology report back, I... Continue Reading →
Radioactive Retort
The local hospital just called to schedule my PET/CT scan. On Friday, I'll have a bit of gallium pumped into my system and then spend three hours strapped down while a machine searches my entrails for biochemical anomalies. Since this is a nuclear radiology procedure, I will need to wait patiently for the results like anyone... Continue Reading →
The Wonder Of Medical Advancement
My health insurance carrier approved my full-body PET/CT scan. Thus, I have been looking up what the heck imaging entails and what the results might show. The scan for which I've been approved offers stunning detail. The PET scanner and CT scanner are superimposed into one image, showing both the 3-D anatomy and any metabolic... Continue Reading →
Lost, Orphaned, and Alone
The most challenging part of my illness is not the hair loss, skin ulcers, or constant nausea. I'm starting to come to terms with the swollen joints and the forced sabbatical from lifting, hiking and cardio. I'm okay with the fact that I'll be on heavy-duty medication for at least ten more months and, quite possibly,... Continue Reading →
Groundhog Day
I spent thirty minutes talking with my infectious disease doctor and nurse practitioner this morning. How am I progressing (or not)? What are my prospects? How does my recovery compare to similar cases? Would a different diet, more sleep, or alternative medicine help? "I don't expect you to get worse," she offered. "Gradually, over the... Continue Reading →
A Hundred Different Diseases
After completing my sixteen-week trial run on a high-dose anti-fungal medication with no improvement, I asked my infectious disease doctor what our treatment plan would be moving forward. I could hear a small sigh over the phone before she replied, "For every 100 people I diagnosis with valley fever, I encounter 100 different diseases. The... Continue Reading →
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