Not-So-Lucky Thirteen

After thirteen days of relief, the low-dose naltrexone seems to no longer be working. On Friday afternoon, I felt the subtle return of that all-too-familiar fatigue, debilitating muscle pain, digestive issues, brain fog and moodiness. By Sunday evening, my magical carriage had transformed back into a pumpkin. After two days of immense struggling and far... Continue Reading →

Radioactive Retort

The local hospital just called to schedule my PET/CT scan. On Friday, I'll have a bit of gallium pumped into my system and then spend three hours strapped down while a machine searches my entrails for biochemical anomalies. Since this is a nuclear radiology procedure, I will need to wait patiently for the results like anyone... Continue Reading →

Lost, Orphaned, and Alone

The most challenging part of my illness is not the hair loss, skin ulcers, or constant nausea. I'm starting to come to terms with the swollen joints and the forced sabbatical from lifting, hiking and cardio. I'm okay with the fact that I'll be on heavy-duty medication for at least ten more months and, quite possibly,... Continue Reading →

Groundhog Day

I spent thirty minutes talking with my infectious disease doctor and nurse practitioner this morning. How am I progressing (or not)? What are my prospects? How does my recovery compare to similar cases? Would a different diet, more sleep, or alternative medicine help? "I don't expect you to get worse," she offered. "Gradually, over the... Continue Reading →

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