Good Things Are Brewing

For the next two weeks, I’ll be running on all cylinders. Since January, my health has taken a dip, so my energy reserves are already a bit depleted. My organization will be hosting an audit and I’m the site coordinator, meaning I’ll be on-call from 5AM to 2PM my time for 10 business days straight. I think that’s a daunting request for anyone, but perhaps particularly so for someone facing chronic fatigue.

My day-to-day is structured in and “on-off” manner, where I spend a block of time working and then take a short break. I no longer have the capacity to give an activity 100% focus for eight hours straight, for two consecutive weeks. I’m hoping I can handle it without exhausting my reserves. Energy is a precious resource.

A few weeks ago, we set up our home centrifuge (haha!) and ran mycotoxin labs. Well the results are in and, just as expected–despite being out of the toxic environment for 15 months and on (ungodly expensive) treatment for 24 months, my partner and I have sky-high levels of everything–Satrotoxin, Verrucarin and Verrucarol, Ochratoxin (A and B), T2 Toxin, Vomitoxin aka Deoxynivalenol, Cladosporium toxin (Cladosporium HSP 70), Alternaria toxin (Alternariol), Aspergillus Toxin (Aspergillus hemolysin), Aspergillus Auto-Toxin (Sterigmatocystin), Penicillium Toxin (Mycophenolic acid), Aspergillus/Penicillium Neuro Auto-Toxin (Gliotoxin), and Stachybotrys Toxin (Trichothecene).

While it’s bad news because several are carcinogenic, causing cancers and Alzheimer’s, it’s also good news because this reinforces that mold exposure is indeed the root cause of our ailments. As such, it is fully reversible. If there is early-stage cancer due to mold, the strong anti-fungal will take care of that, as well. We’re on the right path.

Last week, our doctor reviewed our results with the doctor/researcher who developed this particular test. Tomorrow, our doctor will review the results with us. We’ll get our liver enzymes tested and, once we’re cleared, begin the anti-fungal treatment. We’ll be on that treatment for a minimum of 6 months, but up to a year, depending on how quickly we recover. By the end of the year, I may be back to hiking, teaching yoga, driving, and even saying up past 8PM. I’m trying to find the right balance of remaining hopeful and tempering expectations, as I’ve been sorely disappointed far too many times. But, I think this time will be different. I feel it in my gut. This is my golden ticket back to good health.

Rather than a trip to the chocolate factory, my winning include the opportunity to reclaim my body, my mind, and all the capabilities I once took for granted. If all goes well, I’ll be given a new lease on life. And, this time, I won’t take it for granted. I won’t run myself ragged.

Like the drooping poppy, I’ll soon be able to lift my head toward the sun and open up my arms to catch her warming rays.

I may be quiet over the next two weeks, but good things are brewing. I’m sure of it. And I can’t wait to share what we discover.

30 thoughts on “Good Things Are Brewing

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  1. Oh my…that’s an intense couple of weeks coming up. Sounds like you’ve got a good game plan…now you need to execute it and remember to be good to yourself along the way.
    I love your wisdom regarding the next steps — now that you’re armed with more information from all of the testing and await more details about treatment: “I’m trying to find the right balance of remaining hopeful and tempering expectations”. I’m going to send all the hopefulness I can your way…like crowd-sourcing the good stuff! xoxoxox! πŸ₯°

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  2. The two weeks of auditing sounds exhausting. But it sounds like have a plan and a realistic outlook. Good luck with getting through it.

    And great news about the results. I hope the way forward, including the treatment plan, helps get you back to feeling as normal as possible again! πŸ™πŸ€žπŸ»

    Liked by 2 people

    1. Thank you, Ab! I feel like I’ve done all I can to set myself up for success for these coming weeks. Once I get through it, hopefully it will be smooth sailing. πŸ™πŸ€žπŸ»

      Liked by 1 person

  3. I bet it feels good to have a confirmation- even though what is being confirmed is something you never should have had to encounter in the first place. So now it’s the next step and then as the stars align a healthy toxic free future for you both. So happy you have reached this point Erin πŸ™‚

    Liked by 2 people

    1. Yes, Deb! I can’t begin to express the sense of relief and hopefulness I’m feeling. In this moment, none of the painful parts matter anymore because I can finally see the light at the end of the tunnel. Thank you, thank you, thank you!!! πŸ₯°

      Liked by 1 person

  4. I love all the goodness in your post and the reflecting goodness in the comments. Like Vicki, I love your sentence, “I’m trying to find the right balance of remaining hopeful and tempering expectations” — and in light of the response from your community, I can tell we are trying to find that right balance as well while all the while pulling 110% for you. Sending light, love, and energy!!

    Liked by 1 person

  5. Hi Erin, I’ll be cheering you on these next few weeks for sure! I get the on-off strategic planning of the day πŸ‘ Hopefully, it won’t be too much every day and you’ll get to unplug or at least have some down time even between 5 am – 2pm. It sounds like while not the best news, a confirmation of what you already knew to be true about the mold. Even a confirmation sometimes, at least for me, can be a small triumph in itself. Hang in there! ❀️

    Liked by 1 person

    1. Thank you!! Thankfully, it seems that, aside from a few presentation, I’ll be on-call, so not stretched thin constantly. Good news there!

      Yes. the confirmation, feels like such a victory! With Lyme, I’m sure you understand the pain that comes with being disbelieved or having your experience downplayed. I had an appointment with my doctor yesterday and he was shocked that I’m not bed-bound with my levels (crazy, because I feel decent compared to years ago), but he has patients with similar levels about a month ahead in their treatment that are improving steadily. Hopefully, good things ahead!! ❀️

      Liked by 1 person

      1. Yes, like you, lots of doctor visits where no one had a clue and in some cases implied it was in my head or I was making things up! So, I’m so glad you have a doctor who is supportive and trying to move your health forward. It makes all the difference πŸ™‚ wow, that’s a serious compliment from your doctor! So you’re starting ahead of the norm. Yippee! Great news. And hopefully there’s more to come! ❀️

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