For those readers with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), mast cell activation syndrome (MCAS), long COVID, autoimmune conditions, or any other form of immune regulation, I just discovered a great article that I want to share.
Long COVID: From last days to real hope…
After many years of trying to make sense of my health, I began making small strides in 2019, picking up the pace as time went on. My partner and I have have thousands of dollars and hundreds of hours on medical appointments, testing, treatments, supplements, and more. Some of out most valuable discoveries can be found in this article, for free.
It goes though the triggers, mechanisms, the varied physiological responses, overall approach to treatment, and specifics on targeted treatment for each stage of the inflammatory cascade, including the science and links to the supporting studies.
I’ve tried around 75% of the treatments listed and am still consistently on approximately 50%. My most beneficial for me, in particular, have been the below. I’m happy to explain the science behind each, if anyone is curious.
- 1-2 Tbsp of cod liver oil upon waking to support blood sugar stability
- bedtime combo of taurine, glycine, and magnesium, followed up a shot glass of tart cherry juice and high-quality olive oil for sleep support
- high dose Vitamin D3 paired with K2 (I aim for lab values around 100 ng/mL) for immune support
- quercetin, Meriva curcumin, ubiquinol, glutathione (liposomal and IV), and nigella sativa to reduce inflammation
- d-ribose and alpha lipoic acid for mitochondrial support
- alpha-phosphatidylcholine, lion’s mane mushroom, and plasmalogens for brain repair
- diamine oxidase for mast cell stabilization
If you’re facing any type of chronic inflammatory condition, this could be a great place to start. I’ve tossed out bits of my treatment regimen here and there, but this article is compiled cleanly with all the links to the research. It’s lengthy and overwhelming, but the author’s findings mirror my own, so I believe it to be legitimate and beneficial.
If you check it out and have questions, feel free to ask here. I may have some feedback based on my own experience.
Thanks for posting this. It may be a solution for a lot of us.
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You’re welcome! I hope it’s helpful to someone.
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Veronique is a colleague whom you might want to add as a resource…
https://www.healthrising.org/blog/2018/10/29/me-cfs-naviaux-cell-danger-response-freezing-nervous-system-threat/
Best, Mark
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Thanks for sharing this, Mark! I hadn’t heard of Veronique Mead, but her experience and theories are intriguing. While I don’t recall experiencing trauma in my lifetime, the idea of prenatal trauma is interesting because there were two horrific family deaths shortly before my birth. I’ll need to do some further research in the area. I appreciate the recommendation.
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Well, if Veronique has something that might be of benefit, Dr. G. probably will have as well…
https://tim.blog/2022/09/07/dr-gabor-mate-myth-of-normal/
Best, Mark
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What a wonderful resource to find and to share! This is a must have link on your website!
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Great idea, Tamara!
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I hope this helps people ❤️
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Thanks, Yari! I hope for that, too. ❤️
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This is really great, Erin. I will definitely be reading all of this and taking notes. Thank you!
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I’m truly hope that it help, or at least provides some new avenues for investigation. I’m just amazed–I’ve spent a decade piecemealing together a treatment plan and here it’s close cousin, cleanly presented. I’m so glad this resource exists for others, so they can hopefully finding relief and healing sooner.
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I really appreciate you sharing your experiences!
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Thanks for sharing this. It wasn’t until about 2 years ago that I knew in depth how autoimmune disorders and inflammation could really affect someone’s life. My mom started having issues walking and it was diagnosed as Myositis, an autoimmune disorder that targets and breaks down muscle. Thankfully she’s on treatment that helps manage it. Awareness raising and info sharing are so key.
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You’re welcome, Ab. I’m glad to hear you’re mom has been able to successfully manage the myosis. It’s a bit terrifying to realize your body is attacking itself, and perhaps worse that doctors are often dismissive and sufferers are left to figure things out on their own. Awareness really is important.
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I think the part of your body attacking itself sounds so scary. I have a friend with an autoimmune condition and she said those exact same words. Hang in there!
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Thanks, Ab! I’ve been making slow and steady progress over the years, so all I can ask for is to keep moving in that direction. 🙏
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